Caregiving In The Illness Context

Author: T. Revenson
Editor: Springer
ISBN: 1137558989
Size: 20,42 MB
Format: PDF, Kindle
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How does caregiving affect health and well-being and what resources help caregivers? This book provides a synthesis of psychological research on caregiver stress and brings attention to the personal, social and structural factors that affect caregivers' well-being and as well as recent behavioral interventions to enhance health.

Family Caregiving In Mental Illness

Author: Harriet P. Lefley
Editor: Sage Publications, Inc
ISBN: 9780803957206
Size: 11,66 MB
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"This is the most comprehensive book to-date about the role that families play in caring for adults with mental illness. Unique to this volume is an examination of caregiving roles from an historical perspective as well as from the perspective of various caregiving relationships--parents, adult children, and siblings. Of special importance is Dr. Lefley's delineation of the nature of caregiving throughout the life cycle of the family." Agnes B. Hatfield, Ph.D., University of Maryland at College Park "I find Harriet Lefley's new book Family Caregiving in Mental Illness to be extremely thoughtful and comprehensive. It is all here--family theories and research, caregiving in the context of changes in the family life cycle, coping strategies, cross-cultural issues, advocacy, patient rights, and mental health policy. Dr. Lefley is the expert of experts when it comes to family caregiving in serious mental illness. The book is very readable and accessible to family members, social workers, and policymakers. It represents another big step in Dr. Lefley's courageous effort to bring family issues to public attention." --Richard Tessler, Ph.D. University of Massachusetts Deinstitutionalization suddenly catapults family members into being the primary caregivers for functionally impaired adults who are diagnosed with mental illness. This role as caregiver is one that family members are untrained and unprepared for. In Family Caregiving in Mental Illness, author Harriet Lefley explores the experiences of those giving care for adults with mental illness. She thoughtfully examines the unique characteristics and conceptual models related to mental illness and then surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness. Family burden, including social stigma; treatment barriers; iatrogenic stress; and the relationship between the patient and caregiver are appraised while the influence on other family members is highlighted. The stages of familial response, specific types of coping strategies, and professional and nonclinical services for families are reviewed, along with positive affects on the family's welfare. Finally, cultural factors affecting family caregiving are discussed in the international context and in terms of ethnic differences within the United States. Also considered are the impact of advocacy movements on caregivers, the legal and ethical barriers to care, alternative models to family caregiving, and the maintenance and growth of consumer-run services. All professionals working with persons with mental illness as well as researchers and students in this area will find Family Caregiving in Mental Illness illuminating and valuable.

Family Caregiving In The New Normal

Author: Joseph Gaugler
Editor: Academic Press
ISBN: 012417129X
Size: 12,79 MB
Format: PDF, Mobi
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Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models Examines how existing efficacious models can more effectively reach and serve individual families

Family Caregiving Across The Lifespan

Author: Eva Kahana
Editor: SAGE
ISBN: 0803944314
Size: 15,99 MB
Format: PDF, ePub
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Examining caregiving issues from a multigenerational, family life cycle perspective, this volume deals with the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and discusses responses to these challenges by both caregiving families and caregiving systems. Part One addresses the caregiving paradigm and the relationship of family caregiving research to family life studies. Part Two examines conceptual aspects of caregiving, ranging from the expansion of the caregiving paradigm, caregiving processes and tasks, to the positive aspects of caregiving. Part Three emphasizes how family caregivers are affected by the connection (or lack of it) to macro-level systems.

Always On Call

Author: Carol Levine
Editor:
ISBN: 9780826514608
Size: 15,67 MB
Format: PDF, Kindle
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Combining powerful personal stories with astute analysis and recommendations, Always on Call reveals the hidden struggles of the more than 25 million family caregivers in the United States. While family members have always provided care for one another, recent changes in health care have placed tremendous new responsibilities on them--responsibilities that, only a decade ago, were a routine part of hospital care. This book presents an intimate look at the world of family caregiving. The compelling narratives by caregivers capture the intensity of the caregiving experience, while chapters by noted health care professionals, many of whom speak of their own experiences, analyze the impact of caregiving, urge more professional advocacy on behalf of caregivers, and offer insightful suggestions for building partnerships for change and fostering improvement. (Midwest).

The Spectrum Of Family Caregiving For Adults And Elders With Chronic Illness

Author: Louis D. Burgio
Editor: Oxford University Press
ISBN: 0199828032
Size: 14,20 MB
Format: PDF, ePub
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The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.

Caregiver Stress And Staff Support In Illness Dying And Bereavement

Author: Irene Renzenbrink
Editor: Oxford University Press
ISBN: 0199590400
Size: 10,68 MB
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The need for renewal and support for those who care for seriously ill, dying, and bereaved people has been acknowledged from the very beginning of the hospice and palliative care movement. While often referring to the rewards and satisfactions of the work, Dame Cicely Saunders was the -first to acknowledge that helping encounters with dying patients and distressed relatives could be a source of anguish and grief for dedicated and compassionate carers. Caregiver Stress and Staff Support in Illness, Dying, and Bereavement discusses the challenge of finding a balance between the support needs of patients, families, and staff and the resources available. With contributions from practitioners and researchers from around the world, this book recognizes that palliative care today is being provided in many different settings and that there may be wide variations in the way individuals and organizations identify and manage the stressors that arise through the work. This unique collection of international perspectives on the complexities and management of caregiver stress and staff support builds on the firm foundation Mary Vachon built over thirty years ago in her studies, yet broadens the scope to include significant social, political, and cultural variations on the theme.

Families Caring For An Aging America

Author: National Academies of Sciences, Engineering, and Medicine
Editor: National Academies Press
ISBN: 0309448093
Size: 13,98 MB
Format: PDF, Mobi
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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation’s family caregivers provide the lion’s share of long-term care for our older adult population. They are also central to older adults’ access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

The Challenges Of Mental Health Caregiving

Author: Ronda C. Talley
Editor: Springer Science & Business Media
ISBN: 1461487919
Size: 11,66 MB
Format: PDF, ePub, Docs
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Caring for the ill, disabled, very old, or very young requires a labor-intensive commitment that is not only essential to the well-being of individuals and to society as a whole, but also fraught with physical, financial, and psychological risks. And despite the critical nature of their job, caregivers rarely have avenues of support. The Challenges of Mental Health Caregiving addresses the complexities of the situation with uncommon depth and breadth. Suited to researchers, scientist-practitioners and clinicians, and students seeking a rounded understanding of the field, it examines how caregiving affects the lives, work, and mental health of family and professional caregivers. Chapters explore developmental, cultural, and spiritual contexts of care, addressing ongoing concerns about care in relation to larger health systems and emphasizing the need for care to be viewed as a community, rather than an individual or family experience. Further, the book's conclusion strongly advocates for more effective and efficient uses for available funds and resources while offering workable proposals for service improvements at the policy level. Key areas of coverage: The impact of caregiving on physical and mental health. Integrating mental health and primary care. The promotion of positive mental health outcomes in children and youth. Mid-life concerns and caregiver experience. Loss, grief, bereavement and the implications for mental health caregiving. Policy issues in caregiving and mental health. The Challenges of Mental Health Caregiving is a clear-sighted reference for researchers, clinicians and scientist-practitioners, and graduate students in the caregiving fields, including clinical psychology, social work, public health/medicine, geriatrics/gerontology, public policy, and educational policy.

Caregiving Contexts

Author: Maximiliane E. Szinovacz, PhD
Editor: Springer Publishing Company
ISBN: 9780826103109
Size: 12,11 MB
Format: PDF
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"This volume represents a major step forward in the literature by placing its focus squarely on the caregiving context, its dimensions and how it shapes the process and outcomes of family care. The chapters locate care within the family, rather than a single individual....The family, in turn, in embedded within a larger cultural, community, and social context....These explorations of context will give us a broader view of how caregiving occurs. It will help us improve our theories about care and about the family's role in contemporary society....Care of our elders is an enduring and yet evolving part of life. The focus on context will help us understand, support and learn from the ways that families meet the challenges involved."--from the foreword by Steve H. Zarit, PhD, Professor and Head, Department of Human Development and Family Studies, Pennsylvania State University Here, in Caregiving Contexts, the editors and their chapter authors explore the ways in which demographic change will influence the availability of caregivers and how divergent welfare and ideological systems will affect care among family members and between family and formal care systems. They also discuss the differences in experience between spousal and adult child caregivers, special circumstances such as child or adolescent caregivers, and government and workplace policies that are available to support caregivers in the United States and in some European countries. No other volume is available on caregiving which explores the sociocultural, familial, and sociopolitical contexts that effect both care decisions and outcomes.