Caregiving In The Illness Context

Author: T. Revenson
Editor: Springer
ISBN: 1137558989
Size: 14,74 MB
Format: PDF, ePub
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How does caregiving affect health and well-being and what resources help caregivers? This book provides a synthesis of psychological research on caregiver stress and brings attention to the personal, social and structural factors that affect caregivers' well-being and as well as recent behavioral interventions to enhance health.

Family Caregiving In Mental Illness

Author: Harriet P. Lefley
Editor: Sage Publications, Inc
ISBN: 9780803957206
Size: 11,18 MB
Format: PDF, Docs
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"This is the most comprehensive book to-date about the role that families play in caring for adults with mental illness. Unique to this volume is an examination of caregiving roles from an historical perspective as well as from the perspective of various caregiving relationships--parents, adult children, and siblings. Of special importance is Dr. Lefley's delineation of the nature of caregiving throughout the life cycle of the family." Agnes B. Hatfield, Ph.D., University of Maryland at College Park "I find Harriet Lefley's new book Family Caregiving in Mental Illness to be extremely thoughtful and comprehensive. It is all here--family theories and research, caregiving in the context of changes in the family life cycle, coping strategies, cross-cultural issues, advocacy, patient rights, and mental health policy. Dr. Lefley is the expert of experts when it comes to family caregiving in serious mental illness. The book is very readable and accessible to family members, social workers, and policymakers. It represents another big step in Dr. Lefley's courageous effort to bring family issues to public attention." --Richard Tessler, Ph.D. University of Massachusetts Deinstitutionalization suddenly catapults family members into being the primary caregivers for functionally impaired adults who are diagnosed with mental illness. This role as caregiver is one that family members are untrained and unprepared for. In Family Caregiving in Mental Illness, author Harriet Lefley explores the experiences of those giving care for adults with mental illness. She thoughtfully examines the unique characteristics and conceptual models related to mental illness and then surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness. Family burden, including social stigma; treatment barriers; iatrogenic stress; and the relationship between the patient and caregiver are appraised while the influence on other family members is highlighted. The stages of familial response, specific types of coping strategies, and professional and nonclinical services for families are reviewed, along with positive affects on the family's welfare. Finally, cultural factors affecting family caregiving are discussed in the international context and in terms of ethnic differences within the United States. Also considered are the impact of advocacy movements on caregivers, the legal and ethical barriers to care, alternative models to family caregiving, and the maintenance and growth of consumer-run services. All professionals working with persons with mental illness as well as researchers and students in this area will find Family Caregiving in Mental Illness illuminating and valuable.

Family Caregiving In The New Normal

Author: Joseph Gaugler
Editor: Academic Press
ISBN: 012417129X
Size: 11,94 MB
Format: PDF, ePub
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Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models Examines how existing efficacious models can more effectively reach and serve individual families

Family Caregiving Across The Lifespan

Author: Eva Kahana
Editor: SAGE
ISBN: 0803944314
Size: 12,90 MB
Format: PDF, ePub
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Examining caregiving issues from a multigenerational, family life cycle perspective, this volume deals with the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and discusses responses to these challenges by both caregiving families and caregiving systems. Part One addresses the caregiving paradigm and the relationship of family caregiving research to family life studies. Part Two examines conceptual aspects of caregiving, ranging from the expansion of the caregiving paradigm, caregiving processes and tasks, to the positive aspects of caregiving. Part Three emphasizes how family caregivers are affected by the connection (or lack of it) to macro-level systems.

Always On Call

Author: Carol Levine
Editor:
ISBN: 9780826514608
Size: 17,62 MB
Format: PDF, ePub, Docs
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Combining powerful personal stories with astute analysis and recommendations, Always on Call reveals the hidden struggles of the more than 25 million family caregivers in the United States. While family members have always provided care for one another, recent changes in health care have placed tremendous new responsibilities on them--responsibilities that, only a decade ago, were a routine part of hospital care. This book presents an intimate look at the world of family caregiving. The compelling narratives by caregivers capture the intensity of the caregiving experience, while chapters by noted health care professionals, many of whom speak of their own experiences, analyze the impact of caregiving, urge more professional advocacy on behalf of caregivers, and offer insightful suggestions for building partnerships for change and fostering improvement. (Midwest).

The Challenges Of Mental Health Caregiving

Author: Ronda C. Talley
Editor: Springer Science & Business Media
ISBN: 1461487919
Size: 10,23 MB
Format: PDF, ePub, Docs
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Caring for the ill, disabled, very old, or very young requires a labor-intensive commitment that is not only essential to the well-being of individuals and to society as a whole, but also fraught with physical, financial, and psychological risks. And despite the critical nature of their job, caregivers rarely have avenues of support. The Challenges of Mental Health Caregiving addresses the complexities of the situation with uncommon depth and breadth. Suited to researchers, scientist-practitioners and clinicians, and students seeking a rounded understanding of the field, it examines how caregiving affects the lives, work, and mental health of family and professional caregivers. Chapters explore developmental, cultural, and spiritual contexts of care, addressing ongoing concerns about care in relation to larger health systems and emphasizing the need for care to be viewed as a community, rather than an individual or family experience. Further, the book's conclusion strongly advocates for more effective and efficient uses for available funds and resources while offering workable proposals for service improvements at the policy level. Key areas of coverage: The impact of caregiving on physical and mental health. Integrating mental health and primary care. The promotion of positive mental health outcomes in children and youth. Mid-life concerns and caregiver experience. Loss, grief, bereavement and the implications for mental health caregiving. Policy issues in caregiving and mental health. The Challenges of Mental Health Caregiving is a clear-sighted reference for researchers, clinicians and scientist-practitioners, and graduate students in the caregiving fields, including clinical psychology, social work, public health/medicine, geriatrics/gerontology, public policy, and educational policy.

Families Caring For An Aging America

Author: National Academies of Sciences, Engineering, and Medicine
Editor: National Academies Press
ISBN: 0309448093
Size: 15,35 MB
Format: PDF
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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation’s family caregivers provide the lion’s share of long-term care for our older adult population. They are also central to older adults’ access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

The Spectrum Of Family Caregiving For Adults And Elders With Chronic Illness

Author: Louis D. Burgio
Editor: Oxford University Press
ISBN: 0190455268
Size: 16,18 MB
Format: PDF
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The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.

Clara Barton Professional Angel

Author: Elizabeth Brown Pryor
Editor: University of Pennsylvania Press
ISBN: 9780812200904
Size: 16,42 MB
Format: PDF, Kindle
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Widely known today as the "Angel of the Battlefield," Clara Barton's personal life has always been shrouded in mystery. In Clara Barton, Professional Angel, Elizabeth Brown Pryor presents a biography of Barton that strips away the heroic exterior and reveals a complex and often trying woman. Based on the papers Clara Barton carefully saved over her lifetime, this biography is the first one to draw on these recorded thoughts. Besides her own voluminous correspondence, it reflects the letters and reminiscences of lovers, a grandniece who probed her aunt's venerable facade, and doctors who treated her nervous disorders. She emerges as a vividly human figure. Continually struggling to cope with her insecure family background and a society that offered much less than she had to give, she chose achievement as the vehicle for gaining the love and recognition that frequently eluded her during her long life. Not always altruistic, her accomplishments were nonetheless extraordinary. On the battlefields of the Civil War, in securing American participation in the International Red Cross, in promoting peacetime disaster relief, and in fighting for women's rights, Clara Barton made an unparalleled contribution to American social progress. Yet the true measure of her life must be made from this perspective: she dared to offend a society whose acceptance she treasured, and she put all of her energy into patching up the lives of those around her when her own was rent and frayed.

Children As Caregivers

Author: Jean Hunleth
Editor: Rutgers University Press
ISBN: 0813588057
Size: 15,35 MB
Format: PDF, ePub
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In Zambia, due to the rise of tuberculosis and the closely connected HIV epidemic, a large number of children have experienced the illness or death of at least one parent. Children as Caregivers examines how well intentioned practitioners fail to realize that children take on active caregiving roles when their guardians become seriously ill and demonstrates why understanding children’s care is crucial for global health policy. Using ethnographic methods, and listening to the voices of the young as well as adults, Jean Hunleth makes the caregiving work of children visible. She shows how children actively seek to “get closer” to ill guardians by providing good care. Both children and ill adults define good care as attentiveness of the young to adults’ physical needs, the ability to carry out treatment and medication programs in the home, and above all, the need to maintain physical closeness and proximity. Children understand that losing their guardians will not only be emotionally devastating, but that such loss is likely to set them adrift in Zambian society, where education and advancement depend on maintaining familial, reciprocal relationships. View a gallery of images from the book (https://www.flickr.com/photos/childrenascaregivers)